Thursday, April 7, 2016

Cool list of OT Apps!




Apps By Areas of Occupational Performance (Updated 10/2015)

Note: Additional apps are listed by category on OT’s with Apps.com.
App prices may change. Check other areas of occupational performance that can be relevant when searching for apps.
ADL’s
iPhone/iPad
Seasons, clothing selection and weather concepts

Child
1.99
iPad
Use existing or create multi media instructions for social stories, self care instruction and video modeling .
Adult / Teen
49.99


iPhone / iPad
Video instructions provided in this app to teach shoe tying.
Child
.99
iPhone/iPad
DTT app with discrete training, video on shoe tying; appropriate for all ages; many supporting materials for task analysis.
Adult /
Child
4.99
Description: http://ws.assoc-amazon.com/widgets/q?_encoding=UTF8&ASIN=B006BEZKGI&Format=_SL110_&ID=AsinImage&MarketPlace=US&ServiceVersion=20070822&WS=1&tag=otswiap-20
Android
Basic step by step images of shoe tying
Adult / Child
0.99
 
Android
Instructional app with checklist and text and pictures on hygiene and grooming.
Teen /Adult
free
iPad
Instructional app with pictures, video and voice recording providing steps of hygiene tasks.
Video modeling
Children / Adults w Special Needs
Free / 9.99 full version
iPad
Instructional app with pictures, video and voice recording providing steps of dressing tasks.
Video modeling
Children / Adults w Special Needs
Free / 4.99 full version
iPad
Instructional app with pictures, video and voice recording providing steps of dressing tasks.
Video modeling
Children / Adults w Special Needs
2.99
Low Vision Magnification Apps




iPhone / iPad
Magnification to 16 X with light, color contrasts, freeze mode
Adult
free
iPhone / iPad
Magnification app with freeze and flashlight.
Teen / Adult
free
iPhone /iPad
Magnification up to 8X, basic contrasts, freeze options
Teen / Adult
Free / .99 no ads
iPhone / iPad
Magnification app with contrast, freeze mode, saves freeze images to Photo album, brightness mode and a variety of setting. Compatible with VoiceOver.
Teen / Adult
3.99










Weather apps




iPhone/iPad
Speaks weather outloud. Set location. Speaker is small and difficult to see
Adult/teen
.99
 
iPhone / iPad
Weather app
Children / Adults
free
 
iPhone / iPad
Weather app
Children / Adults
free
Android
Magnification, light, freeze, picture and zoom features
Adult
Free / Plus version
IADL’s
Money Management




iPhone/iPad
Basic budget apps; Takes your expendable $$ and helps keep track of how much you have spend and have available. Simple app with few options
Adult
.99
 
iPhone / iPad
Log income and expenses. Calculates balance, provides reports
Adult / Teen
free
iPhone/iPad
Practice of counting money for all ages
Adult / Child
.99
iPad
Money counting and practical application purchasing for students and adults with disabilities.  Multiple users and data collection features.  Customization options. International currencies.
Adult  / Child
4.99
iPad
Dollar bill counting up practice.  Count to next dollar amount.
Adult  / Child
7.99
iPad
Attainments money training app. Count coins, dollars, make change, shop at beginning, intermediate and advanced levels. Multiple users, collects data
Adult / Child
39.99
iPhone/iPad
Count coins and dollars using real images presented in a calculator screen. Good for individuals with cognitive challenges.
Adult / Child
free
Cash Calculator – Money Counter
iPhone/iPad
Count the different denominations and the app calculates your money. Practical for use in community with identification of value of coin/dollars.
Adult / Child
.99
 
iPhone / iPad
Money denomination identification app from Federal Reserve
Children / Adult
free
Android
App uses camera to identify bill denomination
Children / Adult
free
Shopping




Description: F:\ASUS Library Files 8-9-2013\Libraries\Libraries\Pictures\Piclist to do icon.PNG
iPhone/   iPad
To do manager allowing pictures, lists of tasks to complete
Adult / Teen
1.99
Description: F:\ASUS Library Files 8-9-2013\Libraries\Libraries\Pictures\Shopping List icon.JPG
iPhone / iPad
Create visual shopping list . Check off items while shopping. List can be shared with others.
Adult / Teen
Free / 1.99
Description: F:\ASUS Library Files 8-9-2013\Libraries\Libraries\Pictures\Shopping List Generator icon.PNG
iPhone/ iPad
Create shopping lists with pictures, text to speech, item prices are totaled; Connor Company app
Adult / Teen
4.99
Description: F:\ASUS Library Files 8-9-2013\Libraries\Libraries\Pictures\iGet going to Grocery Store icon.JPG
iPhone/iPad
Visual sequence apps for grocery shopping. Provides visual task analysis and vocabulary for equipment, list, and steps of a shopping trip
Adult / Teen
2.99

iPhone / iPad
Pick images of grocery items to include in shopping list. Adds total of items purchased. Customize grocery item choices. Share items. Excellent app
Adult / Teen
.99





Safety and Emergency Maintenance



iPhone/iPad
Provides images associated with phone numbers for contacting others; provides ability to track users with GPS
Adult / Child
9.99
 
iPhone/iPad
Set GPS location and alarm; alerts user when close to destination
Adult / Teen
.99
Android
Set GPS location and alarm; alerts the user when close to the destination
Adult / Teen
free
iPhone/iPad
Create alerts with email and phone contacts for emergency situation. Uses GPS to determine location
Adult / Teen
free
Cooking




Description: F:\ASUS Library Files 8-9-2013\Libraries\Libraries\Pictures\iGet Cooking icon.JPG
iPhone/iPad
Visual sequence apps for cooking. Provides visual task analysis and vocabulary for equipment, ingredients, and steps of mixing and cooking.
Adult / Teen
4.99
iPhone / iPad
Simple step by step receipes for kids.
Children / Adults
2.99
iPhone / iPad
Cook book for individuals with special diets (allergies and food intolerances). Choose receipes by ingredients to be excluded.
Adults
free
Android
Collect suitable receipes in this app.
Teens / Adults
free





Time and Task Management




Android
Medication and prescription reminder for Android
Adult
Free / 3.99
iPhone / iPad
Medication and prescription reminder for Android
Adult
Free / 3.99
iPhone/iPad
Medication reminder app; logs administration and sends emails when administration is completed. Take pictures of meds; compatible with Apple watch.  
Adult
Free / .99 full version
iPhone / iPad
Apple Watch
Monitor pill administration, BP, water intake, glucose levels. Three apps bundled with this purchase.
Teen / Adult
3.99
Windows
Create task lists, reminders and share with others and across devices
Teen / Adult
free
Android
Create task lists, reminders and share with others and across devices
Teen / Adult
free
iPhone/iPad
Create task lists, reminders and share with others and across devices
Teen / Adult
free
iPhone / iPad
Task reminder app with icons, text, persistent reminders, recurrent reminders. Option to text/notify others when task completed.
Teen / Adult
2.99
Android
Reminder app with icons and text, persistent reminders. Option to text others when task is done.
Teen / Adult
w.99
Description: F:\ASUS Library Files 8-9-2013\Libraries\Libraries\Pictures\Functional Planning System icon.PNG
iPhone/iPad
Scheduling and video prompting option to support daily tasks. Customizable.
Adult / Child
4.99
iPhone/iPad
App creating reminders and alerts with voice recording capabilities.
Adult / Teen
.99 (full)
Description: H:\Pictures from ASUS 15\Voice Secretary icon.PNG
Android
Task reminder with voice recording capabilities. Record a task and schedule a reminer time.
Teen / Adult
2.99
Description: F:\ASUS Library Files 8-9-2013\Libraries\Libraries\Pictures\ToDo icon.PNG
iPhone/iPad
Manage tasks with audio alerts, subtasks and checklists; syncs with iCal and Outlook
Adult / Teen
4.99
Description: F:\ASUS Library Files 8-9-2013\Libraries\Libraries\Pictures\Alarmed app icon.JPG
iPhone/iPad
Set multiple alarms with persistent reminders in his app
Adult / Teen
free
iPhone / iPad
Set recurrent reminders with voiced recorded alarms and icons.
Teen / Adult
4.99
iPhone / iPad
Set reminders, save reminders for reuse or scheduled
Adult
free
Description: F:\ASUS Library Files 8-9-2013\Libraries\Libraries\Pictures\Qcard icon.JPG
iPhone/iPad
Text based reminders for appointments, reminders and guided task allowing multiple step directions.
Adult / Teen
Free / mo. Subscription 2.99
Visual Communication



Description: F:\ASUS Library Files 8-9-2013\Libraries\Libraries\Pictures\Picture Scheduler app icon.JPG
iPhone/iPad
Visual planner with images, video, audio, alarms, repeating functions.
Adult / Child
2.99
iPad
Picture based planning system with audio and video capabilities. Provides day and weekly calendar features.
Adult / Child
14.99
iPhone/iPad
Visual schedule app providing customizable visual schedule
Adult / Child
9.99
 
iPhone / iPad
Text based visual schedule with pictures
Teens +
free
Android
Visual schedule app providing customizable visual schedule
Adult / Child
9.99
Android
Picture, voice recording and text based visual schedule app for Android. Provides checklist. Suitable for teens and older. 
Child - Adult
1.87
 
Android
Visual schedule app
Child - Adult
9.99
iPhone iPad
Created by University of Victoria. Visual communication app with tools for pictures, video, text, voice recording. Able to schedule task within app. Unlimited tasks -14.99
Teens -Adults
 Free / Unlimited 14.99
Communication




iPhone/iPad
AAC app providing customization of communication choices by pictures, symbols and well as words.
Adult / Child
219.99
 
iPhone/iPad
Text based AAC app with word prediction, phrases and keyboard features
Adult / Childe
119.99
iPhone/iPad
Contextual based AAC app allowing hot spots of communication choices and expression. Lite version available.
Adult / Child
49.99
iPhone/iPad
AAC app with up to 9 cells ; switch accessible with Blue2 by Ablenet
Adult / Child
free
   
iPad
AAC app with levels, symbols and text. 1 & 2 switch accessible
Adult / Child
Free / Full 79.99
iPhone/iPad
AAC app
Adult / Child
99.99
iPad
Contextual based AAC app allowing hot spots of communication choices and expression. 
Adult / Child
Free / in app purchase
iPhone/iPad
AAC App, similar in features to iProloquo2go.
Adult / Child
79.99
iPhone/iPad
Text based AAC app. Word prediction, TTS, saves banks of phrases and recent entries. Email and messaging sharing features
Adult / Teen
2.99
iPad
App with two keyboards allowing partnered communication for the iPad.
Teen / Adult
free
Communication - Phone




Android
Create home screen pictures of phone contacts. Aids phone contacts for individuals with intellectural disabilities.
Adult / Teen
Free / in app purchases
Description: F:\ASUS Library Files 8-9-2013\Libraries\Libraries\Pictures\One Tap dial icon 2.JPG
iPhone/iPad
Customize phone contacts on your iPhone with faces or pictures of contacts. Helpful for individuals with intellectual disabilities.  
Adult / Teen
.99
Rest and Sleep
Android
Provide identification, monitoring and strategies for managing anxiety. Customize features. Created by University of West England
Teen / Adult
free
iPhone / iPad
Provide identification, monitoring and strategies for managing anxiety. Customization features. Created by University of West England
Teen / Adult
free
Android
Developed by the Anxiety Disorders Association of British Columbia. Provides education, strategies for anxieties and fear.
Teen / Adult
free
iPhone / iPad
Developed by the Anxiety Disorders Association of British Columbia. Provides education, strategies for anxieties and fear.
Teen / Adult
free
Description: F:\ASUS Library Files 8-9-2013\Libraries\Libraries\Pictures\Sosh icon.JPG
iPhone/iPad
SOSH app with relaxation and shredder components only.
Adult / Teen
4.99
iPhone/iPad
Instruction and practice of breathing exercises to manage stress
Adult / Teen
free
Android
Instruction and practice of breathing ex
ercises to manage stress
Adult / Teen
free
Android
Meditation and mindfulness app
Adult / Teen
free
iPhone/iPad
Provides Strategies for identifying and dealing with mood disorders
Adult / Teen
.99
iPhone/iPad
App to help learn relaxation techniques
Adult / Teen
.99
Android
App supports identification and management of post traumatic stress disorder
Adult / Teen
free
Android
App supports identification and management of post traumatic stress disorder
Adult / Teen
free
Android
Provides a variety of sounds and mixes of sounds and ability to save for review
Adult / Child
free
iPhone/iPad
Provides a variety of sounds and mixes of sounds and ability to save for review
Adult / Child
free
iPhone/iPad
Simple, easy to use app with relaxing sounds and music
Adult / Child
free
iPhone/iPad
Self regulation, app for young students/
Child
free
iPhone/iPad
Self management, self regulation app
Child
2.99
iPhone/iPad
Animal yoga poses for young children
Child
free
iPhone/iPad
Yoga poses for primary aged students
Childe
free

iPhone/iPad
Customizable 5 point scale to assist with awareness of emotions and self- regulation
Adult / Child
free
iPhone/iPad
App featuring a virtual koi pond. Splashing sounds provided when fish and water is touched. Relaxation app
Adult / Child
free
Android
Virtual koi pond app. Relaxation app
Adult / Child
free
iPhone/iPad
Sensory diet app, customizable, unlimited users
Adult / Child
11.99
Description: F:\ASUS Library Files 8-9-2013\Libraries\Libraries\Pictures\Zones of Regulation icon.JPG

iPad
Game app to teach self regulation. Uses Red, yellow, green and blue zones to describe sensory alert levels. Requires Zones of Regulation curriculum for full implementation.
Adult / Child
4.99
Autism Tracker Pro (also see Data Collection section)

iPhone/iPad
Self monitoring and Data collection app. Can be customized to user for self monitoring.  Pro version allows tracking 1 Person, in app purchase ($5.)provides 2-3 Persons; $10 for unlimited Persons; graphs and email data capabilities
Adult / Child
9.99





Education
Reading




iPhone/iPad
Bookshare.org app providing text to speech, highlighting and customization of font size and type for user.
Adult / Child
19.99
Android
Bookshare.org app providing text to speech, highlighting and customization of font size and type for user.
Adult / Child
free
iPad
Text to speech, word prediction, phonetic spell checking, highlighting tools are available in this app.
Adult / Child
19.99
Description: F:\ASUS Library Files 8-9-2013\Libraries\Libraries\Pictures\WordQ icon.PNG
iPad
Word processor with word predicition, reading with TTS and customization of features for individuals with LD. Email and messaging
Adult / Child
24.99
iPad
PDF reader, TTS, annotation, highlighting, typing; Swiss knife of readers
Adult / Child
1.99

iPhone/iPad
Word processing app with text to speech, word prediction, OCR generator and file management support
Adult / Child
29.99
iPhone/iPad
App with text to speech for imported file, PDF, web based text. Manages Bookshare.org files
Adult / teen
9.99
iPhone/iPad
App with text to speech, options to change background, high lighting, text and font size; reflows text on screen with zoom
Adult / child
5.99
Writing




See OT’s with Apps Writing App List





iPad
Customizable keyboard and word processor with word prediction capabilties. Also allows images to be featured in the writing environment.
Adult / child
19.99
iPad/iPhone
Word prediction with text to speech and phonetic assistance
Adult / child
14.99-iPad
iPad/iPhone
Create customized sentence tiles for students to sequence
Adult / child
0.99

iPad
Five trackpad configurations. One-touch clicks for most mouse controls. Touch icons to open files and manage applications. Features for individuals with motoric disabilities.
Adult / child
14.99
iPad
Provides picture supports and word banks for emerging writer. Text to speech, customizable.
Adult / child
20.99
iPad
Provides writing supports: word prediction, word banks and tabs for customized banks of words, text to speech. Customizable writing environment. Developed by Clicker
Adult / child
25.99
Note taking




(Under review)









Handwriting – letter formation




iPad
Prewriting to handwriting skill development. Customize and grade tasks by user.
Child
9.99
iPad
Fine motor/visual motor skill development and handwriting readiness
Child
4.99
iPhone/iPad
Letter/number identification and  formation app.
Child
Lite/ 2.99
iPhone/iPad
Highly interactive letter formation app providing numerous different animations to show direction of letter formation.
Child
Lite/ 2.99
iPad
Handwriting without Tears app
Child
Free / price per user





Math




iPad
Math equation writing keyboards for mobility impaired
Adult / Child
14.99
iPad
Accessible calculator
Adult / Child
6.99
iPad
Type math addition,subtraction, multiplication, long division, fractions, basic equations.  Features carryover features, columns and contrast backgrounds. Print or email as PDF.
Adult/ Child
free
Description: F:\ASUS Library Files 8-9-2013\Libraries\Libraries\Pictures\MyScript Calculator icon2.JPG
iPad
Handwrite math problems / equations and transcribed typed math problem created.
Adult/ Child
free
Description: F:\ASUS Library Files 8-9-2013\Libraries\Libraries\Pictures\MyScript Calculator icon2.JPG
Android
Handwrite math problems / equations and transcribed typed math problem created.
Adult/ Child
free
iPad
Basic and advance keys for math input
Adult / Child
free





Student Agendas




Android
Track classes, assignments, homework, tests; Sync with paid online option
Teen
free
iPad
Track classes, assignments, homework, tests; Sync with paid online option
Teen
free





Work




iPad
Binder note book app; Manages PDF, docs, images; records voice files; syncs with Dropbox,
Adult / Teen
0.99
iPad
Note taking app featuring voice recognition in the app on iPad2.
Adult / Teen
Free
iPhone/iPad
Note taking, organization apps; syncs with many apps
Adult / Teen
Free
iPad
Note taking, organization apps; drawing, highlighting options with file management system
Adult / Teen
9.99
Android
Note taking, organization apps; drawing, highlighting options with file management system
Adult / Teen
free limited time





Play
iPhone/iPad
Barnyard animals in a Mahjong (matching) activity.
Adult
Free/ .99
iPhone/iPad
Four in a row activity. Free allows one player. Purchase allows two players.
Adult / child
Free/ .99
iPhone/iPad
EnsenaSoft provides both online and tablet apps.
Adult / child
NA
iPhone/iPad
Bowling app. Lite provides single player, purchased app allows 2 player mode for turn taking. Easy to use for wide variety of players.
Adult / child
Lite/ 2.99
 
iPhone / iPad
Solitaire game
Adult
free
Android
Solitaire game
Adult
free
iPad
Interactive app focusing on cutting hair
Child
2.99





Leisure
iPhone/iPad
Create fluids of different colors on the screen by touching and drawing.
Adult / child
Free
iPhone/iPad
Interact with water flowing over rocks. Calming
Adult / child
Free
iPhone/iPad
Colorful fluid you can interact with on the iPod
Adult / child
Free
iPhone/iPad
Monsters create tones and tunes when touched. Calming, sweet sounds created.
Adult / child
Free
Player
iPhone / iPad
Plays device music. Switch activation capabilities
Child / Adult
29.99





Social Participation
iPhone/iPad
Interactive videos to teach social thinking, language and behavior skills
Teen / Child
Free; In app
purchase
iPhone/iPad
 Focuses on awareness and identification of feelings and emotions with games, story creation and vocabulary building in a fun, age appropriate way. Appropriate for elementary, middle and high school
Teen / Child
free
Description: F:\ASUS Library Files 8-9-2013\Libraries\Libraries\Pictures\Cute Cut app icon.JPG
iPhone/iPad
Video editing app. Contains a few more features as typing on slides than iMovie
Adult / Child
Lite / Pro 5.99
iPad
Movie editing app for iOS. Good for creating video modeling/self modeling tools for students.
Adult / Child
Free with iOS 8 and later
iPad
Create picture/story sequences with images and video for ADL and iADL tasks
Adult / Child
18.99
Android
Create accessible picture/story sequences with images and video for ADL and iADL tasks.
Adult / Child
2.49
iPad
Create accessible picture/story sequences with images and video for ADL and iADL tasks.
Adult / Child
4.99

Friday, April 1, 2016

Electrode Placement Resource

Happy OT Month!

Thanks again for all who attended the in-service yesterday.  This post is to follow up with the momentum gained on modalities and give a great resource to placing electrodes with motor response outcome. Although we do not have access to the exact equipment seen, it still can be applicable using equipment we have!

Please take a look. The link has several different videos "Chapters" for various parts of the body, I have used it to better my skills and hope you find it helpful or at least good review.

Click me!

Also, Dan gave a great resource for Ionto in his presentation. I have included it below for ease of access. Thanks Dan!

Ionto medication chart

Enjoy,
Kailie

Friday, March 11, 2016

Upcoming CEUs




Hey Team,

I have received these upcoming CEUs in the mail. If any are of interest to you, email me and I'll pass along the dates, cost and location!

kailie.cummings@baltrehab.com

Have a great weekend! Kailie


Friday, March 4, 2016

Y. Wooten Evidence Based Article Week 8

Opheim, Arve,P.T., M.S.C., Jahnsen, Reidun,P.T., P.H.D., Olsson, Elisabeth,P.T., P.H.D., & Stanghelle, Johan K,M.D., P.H.D. (2009). Walking function, pain, and fatigue in adults with cerebral palsy: A 7-year follow-up study. Developmental Medicine and Child Neurology, 51(5), 381-8. -

A multidimensional questionnaire was mailed to 226 people with unilateral (hemiplegic) or bilateral (diplegic) spastic CP who had participated in a 1999 survey. People with additional diagnoses were excluded. Special emphasis was placed on participants with deterioration in walking. The questionnaire was the same as in 1999. One hundred and forty-nine participants (76 males, 73 females with a diagnosis of unilateral or bilateral) spastic CP responded. Fifty-two per cent of all participants reported deterioration in walking function since debut of walking, compared with 39% 7 years previously. In participants with bilateral CP, 71% reported deteriorated walking; compared with 37% of participants with unilateral CP. Participants with deteriorated walking function had greater pain frequency, pain intensity, impact of pain on daily activities, and physical fatigue and reduced balance. The number of people reporting overall mobility problems was almost double compared with 7 years previously. 

The main finding was an increased prevalence of deteriorated walking, significantly associated with bilateral spastic CP, pain, fatigue, and reduced balance. Comprehensive rehabilitation programs addressing these areas are needed. 

Article:
Walking function, pain, and fatigue in adults with cerebral palsy: a 7-year follow-up study
Author: Opheim, Arve, PT, MSC; Jahnsen, Reidun, PT, PHD; Olsson, Elisabeth, PT, PHD; Stanghelle, Johan K, MD, PHD
Abstract:
To compare walking function, pain, and fatigue in adults with cerebral palsy (CP) 7 years after an initial survey.
A multidimensional questionnaire was mailed to 226 people with unilateral (hemiplegic) or bilateral (diplegic) spastic CP who had participated in a 1999 survey. People with additional diagnoses were excluded. Special emphasis was placed on participants with deterioration in walking. The questionnaire was the same as in 1999.
One hundred and forty-nine participants (76 males, 73 females; mean age 40y 5mo, SD 10y 7mo, range 24-76y) with a diagnosis of unilateral (n=81) or bilateral (n=68) spastic CP responded. Fifty-two per cent of all participants reported deterioration in walking function since debut of walking, compared with 39% 7 years previously. In participants with bilateral CP, 71% reported deteriorated walking, compared with 37% of participants with unilateral CP. Participants with deteriorated walking function had greater pain frequency, pain intensity, impact of pain on daily activities, and physical fatigue and reduced balance. The number of people reporting overall mobility problems was almost double compared with 7 years previously.
The main finding was an increased prevalence of deteriorated walking, significantly associated with bilateral spastic CP, pain, fatigue, and reduced balance. Rehabilitation programmes addressing these areas are needed.
Full text:
Headnote
AIM To compare walking function, pain, and fatigue in adults with cerebral palsy (CP) 7 years after an initial survey.
METHOD A multidimensional questionnaire was mailed to 226 people with unilateral (hémiplégie) or bilateral (diplegie) spastic CP who had participated in a 1999 survey. People with additional diagnoses were excluded. Special emphasis was placed on participants with deterioration in walking. The questionnaire was the same as in 1999.
RESULTS One hundred and forty-nine participants (76 males, 73 females; mean age 4Oy 5mo, SD 10y 7mo, range 24-76y) with a diagnosis of unilateral (n=81) or bilateral (n=68) spastic CP responded. Fifty-two per cent of all participants reported deterioration in walking function since debut of walking, compared with 39% 7 years previously. In participants with bilateral CP, 71% reported deteriorated walking, compared with 37% of participants with unilateral CP. Participants with deteriorated walking function had greater pain frequency, pain intensity, impact of pain on daily activities, and physical fatigue and reduced balance. The number of people reporting overall mobility problems was almost double compared with 7 years previously.
INTERPRETATION The main finding was an increased prevalence of deteriorated walking, significantly associated with bilateral spastic CP, pain, fatigue, and reduced balance. Rehabilitation programmes addressing these areas are needed.
ABBREVIATION
SF-36 General Health Survey Short Form 36
A new definition of cerebral palsy (CP) has recently been adopted, which is: 'a group of permanent disorders of the development of movement and posture, causing activity limitation, that are attributed to non-progressive disturbances that occurred in the developing fetal or infant brain. The motor disorders of cerebral palsy are often accompanied by disturbances of sensation, perception, cognition, communication, and behaviour, by epilepsy, and by secondary musculoskeletal problems'.1 The disturbances of motor control are often accompanied by problems in body structure and function, such as abnormal muscle tone and coordination, contractures, and deformities. Activity limitations, such as locomotion problems,2 and participation restrictions, such as reduced employment, are also seen.
Extensive research has been conducted in the paediatric CP population. In the adult population, however, there are relatively few studies and most of these are cross-sectional and not follow-up studies.2-7 Many are hospital- rather than population-based. Murphy et al.3 included a large proportion of people with dyskinesia and quadriplegia, but only 20% with hemiplegia and diplegia, and Turk et al.4 studied only women. The studies by Bottos et al.,6 Andersson and Mattsson,2 and Jahnsen5 are rehabilitation-based, meaning that the recruited participants had been in contact with habilitation and rehabilitation services; these studies have proportionally higher numbers of people with diplegia and hemiplegia, which reflects the known distribution of the subtypes Ln the population with CP.8
Deterioration in walking and overall functional mobility in adulthood is described in several studies.2^1'6'9 In the study by Jahnsen et al.,9 45% of the respondents reported deteriorated walking function and, of these, 70% reported that this had happened before the age of 35 years. Selfreported causes of deterioration in walking function included musculoskeletal pain, fatigue, and lack of physical activity. Andersson and Mattsson2 found that 35% of the respondents reported deterioration in walking, which had happened before the age of 35 years in 63 % of these.
Several authors have hypothesized about the causes of the deterioration in walking. Proposed causes include abnormal biomechanical forces in muscles and joints, leading to excessive stress, strain, and overuse syndromes,3 and an imbalance between physiological resources and demands. Adults with CP have reported increasing pain,11'12 fatigue,13 reduced overall functioning in everyday activities, and reduced social integration and participation in work and sports activities.7
The course of and changes in walking function, pain, and fatigue with increasing age in adults with CP has not been sufficiently investigated. In a continuing effort to learn more about the consequences of living with this lifelong disability, there is a need for longitudinal and intervention studies.
The aim of the present study was to compare the results from a survey by Jahnsen5 with data from the same participants 7 years later. Special emphasis was placed on walking function, pain, and fatigue in participants with unilateral (hémiplégie) or bilateral (diplegie) spastic CP. The prevalence of pain and fatigue in those who reported deterioration in walking was also studied.
METHOD
Participants
In the autumn of 2006 we followed up a subgroup of participants from a survey of the health status of adults with CP in Norway conducted in 1999.5 We used the diagnostic classification system from the Surveillance of Cerebral Palsy in Europe,14 in which CP is classified as spastic, dyskinetic, or ataxic, and spastic CP is further classified as unilateral or bilateral.
Inclusion criteria in the present study were unilateral (hémiplégie) or bilateral (diplegie) spastic CP at Gross Motor Function Classification System (GMFCS) levels I to IV,15 and currently or previously able to walk indoors with or without support. Exclusion criteria were dyskinetic, ataxic, or bilateral CP at GMFCS levels IV or V and inability to walk indoors with support, and documented intellectual disabilities.
The same questionnaire was used as in 1999.5 It was sent by mail, and a written reminder was sent after approximately 3 weeks. The answers were coded and entered into the Statistical Package for Social Sciences, version 14.0 (SPSS Inc., Chicago, IL, USA). The questionnaire contained reliable and validated scales on walking function, pain, and fatigue. Additional questions on fatigue were asked.
Walking function
GMFCS levels in 2006 were obtained through self-reporting, which has excellent agreement with professional ratings.16 In 1999, the GMFCS levels were scored professionally post hoc, on the basis of the available information on walking function. Perceived changes in walking function since walking debut were graded as better, unchanged, or deteriorated. Participants also reported the age at which the change in walking function occurred. This was given in 5-year intervals (e.g. 20-2 4y, 25-29y). Characteristics of the changes in walking were expressed as alternatives, such as improved or deteriorated balance, increased or reduced muscle strength, increased or reduced cardiorespiratory fitness, and faster or slower walking speed. Overall mobility in work and leisure time was expressed as no movement problems, difficulties in moving, or not able to move at all when required.
Musculoskeletal pain
The number of pain sites was reported with checkboxes for eight body parts, and pain frequency was reported as never, seldom, monthly, weekly, or daily. Daily pain for more than 1 year was considered chronic, and the prevalence was compared with that of the general population in Norway.17 The generic health-related quality of life instrument, Short Form 36 (SF-36) domain 'bodily pain' was used to measure the combination of pain intensity and the impact of pain on work and activities of daily life. The SF-36 uses a 0-100 scale, where 0 represents the greatest and 100 the least impact of pain on daily Ufe and health.18 The results were compared with normative data from the Norwegian general population,19 which has an age distribution containing more elderly people than the present study. Pain intensity during the last month was assessed with a 100mm visual analogue scale, with the anchor points 'no pain' and 'worst possible pain'.20 This type of scale is frequently used in pain studies, but to our knowledge it has not been validated in people with CP.
Fatigue
The experience of feeling exhausted, tired, weak, or lacking energy21 was measured using two scales, the Fatigue Questionnaire22 and the Fatigue Severity Scale.23 The former was used in the original study and has a population-based norm, thus allowing comparisons.24 The age distribution in the reference material for the Fatigue Questionnaire is the same as for the SF-36. Chronic fatigue was considered according to Loge et al.24 The Fatigue Severity Scale was added because it does not require the respondents to compare fatigue status retrospectively and it explores the agreement with different expressions related to the impact of fatigue. The Fatigue Severity Scale has been translated and validated in the Norwegian population and has population-based norms.25
Statistics
Descriptive data were given as means and SDs for normally distributed continuous data and as medians and 25th to 75th centiles for ordinal or skewed data. Prevalence estimates are presented as percentages and 95% confidence intervals (CI). Parametric methods (f-tests) were used for continuous data with a normal distribution, and non-parametric methods were used for ordinal variables and variables with a skewed distribution. The non-parametric methods included the Mann-Whitney U test for comparison of independent groups and the Wilcoxon signed rank test for paired data. Pearson's χ^sup 2^ test was used for comparison of independent groups of categorical data, and die McNemar test for paired categorical data. Kaplan-Meier statistics with corresponding log-rank tests for comparison of different CP diagnoses were used to explore the age at which a deterioration in walking function was reported. GraphPad calculators (GraphPad Software Inc., La Jolla, CA, USA) were used for norm-based comparisons with the SF-36, Fatigue Questionnaire, and Fatigue Severity Scale.
Approval for the study was obtained from the regional ethics committee in soudi-eastern Norway and from the Commissioner for the Protection of Privacy in Research. All participants gave written informed consent.
RESULTS
Of the 288 people with unilateral or bilateral CP who participated in the original study,9 62 could not be reached, had died, or had said no to further studies, resulting in 226 people eligible for the follow-up study. Of these, 73 were non-responders, and four were excluded because of selfreported additional diagnoses like multiple sclerosis (w=3) and psoriatic arthritis (w=l). Thus, 149 people (66% of the eligible and 52% of the original participants) were included in the present study. A non-responder analysis was conducted, including all of the participants with uni- or bilateral spastic CP in the 1999 survey, except those who were dead, had never walked, or were excluded. There was no difference between respondents and non-respondents in age, sex, or diagnosis. A larger proportion of people at GMFCS level ? and a lower proportion of those at level TJI were found in the respondents (χ^sup 2^=7.6, df=3, p=0.055). Participants' demographic and diagnostic characteristics are presented in Table I. Compared with the original study, the present study included a slightly larger proportion of people with bilateral CP at GMFCS levels I and ?, and of people with a higher education level.
Walking function
In the whole group of 149 participants, 16% reported improved, 31% unchanged, and 52% deteriorated walking since dieir walking debut The prevalence of deterioration increased from 39% in 1999. In people with bilateral CP, 71% reported deteriorated walking compared with 37% in unilateral CP. Of me 89 people who reported unchanged or improved walking in 1999, walking had deteriorated in 29 (33%) in 2006, whereas 1 1 (19%) of those with a deteriorated walking in 1999 (»=58) reported improved or unchanged walking in 2006 (p<0.001).
The GMFCS levels of unilateral and bilateral CP of respondents in 1999 and 2006 are presented in Table ?. There were frequent shifts between levels I and ? and vice versa. Forty-three per cent of those at level ? in 1999 had shifted to level I in 2006, and 26% had shifted in the opposite direction. In addition to the shifts between levels I and ?, three people, all with unilateral CP, shifted across two levels, and 15 people shifted across one level towards a reduced function. Nine of the 10 people who shifted from level HI to level IV had bilateral CP. Two people shifted from level HI to level ?: one was using crutches after an accident in 1999, and the other was walking without aids but also using a wheelchair. The change from level IV to level ? in one person is probably due to an error from 1999 (Table ?).
The age when changes in walking function had occurred was reported by 105 people, of whom 75 reported a deterioration. A Kaplan-Meier plot of the time to walking deterioration in the unilateral and bilateral groups is shown in Figure 1. The plot displays a marked group difference around the age of 35 years. The Kaplan-Meier estimate of the median age of walking deterioration was 52 years in unilateral CP (95% CI 34-70) and 37 years in bilateral CP (95% CI 34-39; log rank χ^sup 2^=7.8, df=l,/>=0.005).
In the youngest age group in 1999 (S25y), diree out of 31 people experienced deterioration in walking between 1999 and 2006.
Of those who reported improved or unchanged walking in 2006 (w=71), 26 participants (37%) regarded the improvement as a result of improved balance, 20 participants (28%) a result of increased muscle strength, and 14 participants (20%) a result of improved cardiorespiratory fitness. Of those who reported deteriorated walking in 2006 (n=78), 51 (65%) regarded the deterioration as a result of impaired balance, 26 (33%) a result of reduced muscle strengm, and 22 (28%) a result of bodi reduced cardiorespiratory fitness and reduced walking speed. Spasms, stiffness, 'wear and tear', pain, and reduced training were reported by 19 participants (24%). The number of people with problems of overall mobility increased from 20 (13%) in 1999 to 37 (25%) in 2006 (mean difference 12%, 95% CI 5-19%,p=0.001).
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Table I: Demographic and diagnostic distribution of the present respondents compared with those in the original study by Jahnsen5
Subgroup analysis showed that the group with improved or unchanged walking in 2006 had a higher proportion of participants at GMFCS level I, whereas the group reporting deteriorated walking were at higher GMFCS levels (χ^sup 2^=36.8, df=4,p<0.001; Table IH).
Pain
Musculoskeletal pain scores showed that the prevalence of daily pain increased from 23% in 1999 to 3 1% in the present survey (mean difference 8%, 95% CI 1-14%, /»=0.027). The proportion of people reporting 'seldom' or 'no' pain was reduced from 52 to 41% (mean difference 11%, 95% CI 4-19%, p=0.004). The number of people reporting pain from one or more sites increased non-significandy from 1 17 (79%) to 123 (83%, 95% CI 76-88%), and the median number of pain sites was unchanged at 3 (25di to 75th ceñidles 2-5). The most common pain sites were back, neck, and feet; of those reporting pain, 67, 51, and 50% respectively, reported it at these sites. Median pain frequency increased between 1999 and 2006 from 'seldom' to 'monthly' (z=- 3.1, p=0.002), whereas mean pain intensity on the visual analogue scale and die prevalence of chronic pain were unchanged, from 20 to 24% (95% CI 17-31%, P=OAS). The median score in the SF-36 domain 'bodily pain' changed significandy in a negative direction from 62 (25th to 75th centiles 41-100) to 61 (41-84; z^3.47, p=0.001).
As in the study by Jahnsen et al.,11 scores in the SF-36 domain 'bodily pain' were significantly lower dian in die Norwegian general population, except for the men in 1999 (p<0.001).19 The prevalence of chronic pain was higher in the CP population than in the general population at 24 and 15% respectively (mean difference 9%, 95% CI 2-16%, i=2.6, df=148,p=0.01).
Subgroup analysis of the participants in 2006 showed that those who reported deterioration in walking function also reported significandy increased pain frequency, more pain sites, higher pain intensity, and more impact of pain on daily life and activities (Table IH).
Fatigue
Fatigue scores showed no change in the physical or mental fatigue subscales between 1999 and 2006. As in 1999,13 on the Fatigue Questionnaire, the mean score for the physical domain (9.2 [SD 3.3]) and total score (13.5 [4.5]) were significandy higher than in the general population (7.9 [3.1] and 12.2 [4.0] respectively, t=4.9 and 3.8, df=2432, p<0.001); there was no difference in the Fatigue Questionnaire mental subscale. The proportion of participants with chronic fatigue was significandy higher in the population with CP than in the general population (22%, 95% CI 15-29%, vs 11%, t=3.3, df=148, p=0.001).24 The Fatigue Severity Scale scores were also significandy higher dian in the general population (4.4 [1.4] vs 4.0 [1.3], mean difference 0.4, 95% CI 0.18-0.62, t=3.5, df=2002, p<0.001).25
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Table II: Gross Motor Function Classification System (GMFCS) levels of the present respondents compared with those in the original study by Jahnsen5
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Figure 1: Kaplan-Meier plot of the proportion of persons not experiencing a deteriorated walking function in adults with unilateral and bilateral CP. Vertical tic marks indicate where data have been censored.
Subgroup analysis of the participants in 2006 showed that the Fatigue Questionnaire physical subscale and the Fatigue Severity Scale scores were significandy higher in the group with deteriorated walking, whereas the improved or unchanged group had similar fatigue scores to those of the general population. There was no group difference in the mental fatigue score (Table III).
DISCUSSION
The major finding in the present study was that adults with CP experience a continuous deterioration in walking function. The prevalence of this problem increased among the respondents from 39% in 1999 to 52% in 2006 and was most common among participants with bilateral CP. This deterioration was associated with increased pain frequency and intensity, more pain sites, a higher impact of pain on daily life, and physical fatigue. There was an almost doubling of participants reporting problems of overall mobility between 1999 and 2006. Andersson and Mattsson2 found a somewhat lower prevalence of deteriorated walking ability (35%) in a population with CP that was 4 years younger than those in this study.
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Table III: Perceived changes in walking function over the years up to 2006 in the present respondents, in relation to diagnosis. Gross Motor Function Classification System (GMFCS), pain and fatigue.
The present study indicates that people with bilateral CP at GMFCS level III have a higher risk of deterioration in walking dian those with bilateral CP and milder impairments or those with unilateral CP with mild or moderate impairments. A reason for this might be overuse, as the people at GMFCS level LTJ might be overusing their resources in order to have a walking function that meets social expectations (e.g. the ability to cross the road on the green light or to walk together with non-disabled peers). However, other important environmental factors, such as access to social services, home-based rehabilitation, and physical training, in addition to body functions such as pain, fatigue, and reduced balance, all contribute to the deterioration in walking. Some of the shifting in GMFCS levels can be a result of this deterioration, but it can also be a matter of choice, as some people might start using a wheelchair for energy conservation over longer distances.
In the youngest age group (<25y in 1999), 10% experienced deterioration since 1999. This is a serious problem, as they have a long life ahead of them.
The most frequendy reported characteristic of deteriorated walking was reduced balance. Balance is an important part of walking function, and impaired balance has been found in children with CP.26 The present study points to a relationship between deteriorated walking and reduced balance; further studies on postural control and balance in adults with CP are needed to investigate this relationship. This result also indicates that balance needs to be a specific focus in the follow-up of people with CP from an early age.
The near doubling of people reporting problems of overall mobility might have been caused by difficulties with public accessibility and transportation, and the availability of assistance. In the light of political efforts towards participation possibilities for all, these results are discouraging and show the need for increased efforts in this area.
There was no change in the experience of fatigue between 1999 and 2006. This is rather surprising but may be explained by the already high levels of physical fatigue13 compared with the general population.24 The facts that there was no difference in the Fatigue Questionnaire mental scale compared with the general population, and that those who reported deteriorated walking had significandy higher physical fatigue scores dian the general population, whereas the group without deteriorated walking reported the same fatigue level, indicate that the fatigue experienced in CP is mainly of physical origin. It is possibly caused by both overuse and reduced physical fitness. The reference material for both the Fatigue Questionnaire and the SF-36 has an older age distribution than the people in this study. As bodi 'bodily pain' and fatigue scores increase with age, this suggests even larger differences from the reference material if data had been age-corrected.
The number of pain sites and pain intensity on the visual analogue scale did not change from 1999 to 2006, but pain frequency and impact of pain on daily life increased. The relatively unchanged pain intensity and number of pain sites agree with a previous study.12 The more often pain is experienced, the more it may interfere with daily activities. This might be the reason for the increased impact of pain on daily activities that was found in the SF-36 bodily pain domain. Those who reported deteriorated walking had significandy higher pain scores on all scales dian those without deterioration. Pain management is therefore an important element to consider when aiming at preserving walking function in adults with CP.
Methodological considerations
The non-respondent analysis showed no major difference between the respondents and the non-respondents. Although the questionnaire was sent to all reachable participants from me 1999 survey who had bilateral or unilateral CP and were able to walk or had been walking, it seems that those with a relatively stable walking function and who were still walking were more likely to respond. The original study5 attempted to reach all people with CP in Norway, using all available registers in rehabilitation hospitals and from patient organizations, but it had relatively few representatives from older age groups. Two different mediods of obtaining GMFCS levels can to some extent explain the relatively large shifts between levels I and JJ and vice versa, probably because these levels are relatively close to each other, compared with the other levels.
CONCLUSION
The main finding in the present study was an increased prevalence of deteriorated walking function among adults with CP, associated with higher levels of pain, fatigue, and reduced balance. There was a near doubling of people reporting problems of overall mobility. Future studies should examine the relationship between walking and balance function, as well as the consequences on the level of participation that these results indicate. A more intense focus on pain and fatigue management as well as on balance training is needed in the follow-up of these people.
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References
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Y. Wooten Evidence Based Article Week 7

Andelic, N., Bautz-Holter, E., Ronning, P., Olafsen, K., Sigurdardottir, S., Schanke, A., . . . Roe, C. (2012). Does an early onset and continuous chain of rehabilitation improve the long-term functional outcome of patients with severe traumatic brain injury? Journal of Neurotrauma, 29(1), 66-74. 


Though many studies support premise of early rehabilitation for persons with traumatic brain injury (TBI), few studies have investigated the effect of integrating rehabilitation into acute TBI care. The aim of the study is to evaluate whether a continuous chain of rehabilitation that begins with the acute phase could improve the functional outcome of severe TBI patients, compared to rehabilitation that starts in the sub-acute phase of TBI. The study includes 61 patients that are divided into two groups: (A) patients receiving early rehabilitation and (B) patient receiving delayed rehabilitation. Functional outcomes were assessed 12 months post-injury with the Glasgow Outcome Scale Extended (GOSE) and the Disability Rating Scale (DRS). In group A, 71% of patients scored a favorable rating (6-8) whereas only 37% in group B score the same.  These results support the hypothesis that better functional outcome occurs in patients who receive early onset and a continuous chain of rehabilitation.